WOW! Its been awhile! I am sorry, when I started this blog I had every intention of posting every week at least. Yeah.... that hasn't worked out so well! 

As I mentioned in my previous post, Carter has been seeing Dr. Kuratani , an epilepsy specialist and he added a new medication ( depakote ) . Carter had a seizure at school the morning of May 25th, aside from typical post seizure, he returned to his normal self quite a bit sooner than usual. We had a scheduled appointment with Dr. Kuratani on June 14th, at which he increased his depakote dose. That night Carter must have had a nightmare or sensed he was going to have one because I awoke to him on my floor at around 2am having a seizure. I didn't even know he was in my room! But at some point he had gotten some blankets and made himself a bed on my floor. The next morning we started the depakote increase.  He seemed to be doing well at first but after a week his behavior started to go downhill, as well as his back/muscles hurting, he became more agitated and showing odd behavior such as biting himself. Last Friday he had another seizure. I spoke with Dr. Richardson and he had Carter come in and get more blood drawn to do more testing. We are still waiting on the Lamictil levels ( which is he is expecting to be high ) but everything else came back normal. Could be side effects of the depakote or the depakote increase may have brought his lamictil level too high. Either way, we were urged to go back to the original depakote increase. Early this afternoon he had another seizure with Ryan and Holly. The Dr did say the change in dose could cause a seizure within the next couple days, that was Saturday and this is Tuesday so who knows. I have a call into him and hopefully will hear back tonight or tomorrow. It is so frustrating that we can not find a medication to control this! Just when you think its safe to breathe again...its not. And having to miss work every other week is like kicking you when your down.. I am dreaming of a more stable and normal future, whenever that may be.

Happy Summer!