Hello everyone! Since my last post we have done some tweaking to Carter's meds. Back in January his lamotrigine changed manufacturers. At first I didn't really think anything of it. But once he started having more daytime seizures I started to wonder about it. I asked his Dr a couple of times but never really got the feeling he was concerned. Well, as you could tell from my last post, I had enough, I was encouraged by a friend to look into the manufacturer switch. I called medco and spoke to their pharmacist. She said that it absolutely could cause the spike in seizures, I explained to her that he had the first two in May and then one in September and then nothing until February, only 3 1/2 weeks after the manufacturer switch. She of course couldn't say for sure this was the cause of the increased daytime seizures, but she had other cases where it had. She strongly recommended that we switch back to the old manufacturer, which we did last Thursday. I am hopeful that the switch will help reduce the daytime seizures. It was just too much of a coincidence that 3 weeks after the change he had a cluster of seizures and then each time his Dr increased his dose, he would have another.

We also met with the epilepsy specialist today. He is adding a new medication that he believes could take care of his daytime seizures and his nighttime ones. Of course he can't say for sure that it will work, but I am hopeful. We will reduce the lamotrigine dose and keep the vimpat for now, but don't think it will stay on as part of the long term plan ( vimpat ).We will meet with him in a couple months to check his progress. In the meantime Carter needs to be closely supervised as we do not have control of seizures right now. We had a good talk with him and got some good information. He believes Carter is having complex-partial seizures, meaning only part of the brain is seizing, this does not mean however that these are the only types he will have, he has already had a few absent seizures ( staring spells ) and it is a possibility he could have a grand mal seizure. This new medication ( should it work ) would be control for both partial and general ( grand mal ) seizures, as well as the ESES. I am feeling very optimistic about this... I just have a good feeling :)

Have a great night everyone and keep the prayers coming!

Nicole