Carter has had a total of 5 seizures since Monday morning, 4 of them happened today. We went in to get his blood drawn early this morning to check his lamictil levels before he took his morning dose of medicine. We should get the results of that tomorrow sometime. Carter is having what his Dr calls " a cluster of seizures" which could be brought on by a number of things, but the most important thing is stopping them. He perscribed a medication similar to the one he got via IV in the hospital on February 14th. We were halfway out the door to the hospital tonight after his last episode when I got a call back from the Dr, if this medicine stops the seizing we should not have to take a trip to the ER, if it doesn't we will need to go in order to get the medicine via IV. His Dr is hopefull this should stop them and if it does we will keep some on hand should this happen again. I asked why the sudden spike in seizures ( obvious question, I know ) and just like last month, its hard to tell for certain. Stress, lack of sleep, illness, missing a dose of medication are a few factors that could play a part in this, and he does seem to have the begining signs of a cold.... but the Dr also said it could be his ESES still evolving. That would be unfortuante, meaning we haven't seen all this disease can and will do to Carter boy. We are going to continue to work with the dosage on his current medications before we start ruling one out, and will take a bigger look at his condition and options about where to go from here when we meet with the epilepsy specialist.
Have a good night everyone...
Oh my goodness, Poor Carter boy. I bet he does not even know what to think of all of this and you Nicole have got to be exhasted. I wish I could help in some way. Please know that my thoughts and prayers are with you all. Thank-you so much for the update. I pray for Carter and that you will all get some good sleep.
ReplyDeleteLove Cheryl